Wednesday, December 7, 2011
“Warning Shot across the Bow”
Please let me take one of these last moments to encourage you and those you love. When dad first came to live with me in early October, we had a lawyer come by the house and draw up dad’s Will, Advanced Directive, and Power of Attorney paperwork. The POA and AD require a Notary stamp, the Will requires two witnesses and a Notary. Thankfully, I was able to get him to sign the POA paperwork a day before we ended up needing it, the day before he went into the hospital for the first time. This, with the HIPPA documents let the doctors talk to me, and let me make decisions according to Dad’s wishes. Otherwise we would have been left at their mercy to do what they wanted to do and not necessarily what Dad wanted. Unfortunately, and herein lies my warning to you. I never got him to sign his will, waiting for a lucid moment AND having two witnesses and a notary on hand(!), the moment never returned… and therefore we are now getting to enter the wonderful world of probate, a long drawn-out process where the Government gets to hold all of Dad’s assets until it decides how many taxes it will retain before letting us have what our father wanted us to share very simply, equally. Oh yeah, and that POA that let me manage his bank account, died with him, so there goes the ability to pay the ever-mounting bills. No matter how young or healthy you think you are, this will not be something you want to deal with when you’re actually staring death in the face. For your family’s sake, settle things now.
Some “Sundowner’s” (i.e. not-so-sweet) Moments
In case you’re interested in some of the more difficult details of the process... here’s one night of frustration that I happened to think to record as we were going through it. (I debated on posting this now, after the outcome we realized,…as it feels so awful to admit I acted this way with him, even if you give me the excuse that it may have been a defense mechanism(?) But I guess I’m thinking that maybe it will help another caregiver out there to prepare for the harsh realities that I pray you never have to endure.)
2:30am- "Blah, Blah, Blah..."
He's still refusing to drink water, but he insists on trying to talk. So I tell him all I can understand is “blah blah blah” unless he wants some water...he refuses, so, every time he talks I just interrupt him with his same gravelly voice saying “blah blah blah”, it quiets him for a few minutes, he may take a couple drinks, but it's not near enough, if I offer more, he just spits it out. So I keep telling him he might as well stop talking because all I can understand is “blah blah blah”. Unfortunately, even that tactic stops working and he just keeps mumbling...... oh well.... just a funny conversation to report. "have to laugh, right?" I've also learned that ignoring him also eventually gets him to quiet down.... hate to have that attitude, but he won't remember my actions of apparent cruelty anyway. Call it survival mode for the caregiver. ;-)
3:45am- "Please Sir..."
I awake to "PLEASE, GIVE ME SOMETHING TO EAT!" and I say, "You don't have to yell, that's what I've been waiting to hear." So, I go around and try to give him water for starters, "No!" Ensure, "No!" I say, "Dad, what do you want?" "Please sir, give me something to eat, this isn't a game, just let me go home and eat my breakfast or dinner." I offer a couple more times, "What do you want?" "Please sir....blah blah blah". As I sit here typing this in the dark, referring to his diaper which I've also checked, he's saying, "Sir, cut this thing offa me.......please sir.......please do some damn thing....." and the mumblings continue....4:05- back to sleep for me....praying this feeding tube today really works....aha! He's snoring! oops, now he's mumbling again.
4:30am- FEEDING!
first meal in about 36 hours! And by meal, I mean I got him to eat a few bites of cereal (sweet grits?), a few sips of Ensure and water and a bite of banana! and by a bite, I mean a quarter of a slice, about a 1/2 inch thick, but it's food in the belly! Yay! I have a little mercy on what I'm sure are aching shoulders and loosen his restraints a little, but I know how tricky he can be, so not too much. I keep looking over there and his hand is straight up at the elbow (the limit) He's trying to stretch the ties...we'll see...
9:00am- sweet moment…
Drs come in to take him down to pull 200ml...about 1/4 quart fluid off his lungs (better than the 700ml (3/4 quart) they pulled off in Arlington!) Just before the doctors came in, I just remembered, I was standing next to him and he appeared to have something in his hands... I think he was threading a fishing hook onto a line. He got a little frustrated with his shaky hands and gave me the hook. ;-)
After he returned, he "ate" a little... actually asked for some orange juice and drank a couple sips! asked me about how I was "General, Sir?" ...in and out of napping, telling me stories about early military days and days right out of high school... fishing -caught a 10 inch bass! Talk about college, and his brother working in a nearby town... snore....mumble...snore... ;-) I'm just happy we're in real history land instead of his scary captivity, wanting to get outta here place. He mumbles, I give him an affectionate look of attention, he gives a sweet shrug, like, "whatta ya gonna do?"... gotta get a job, if you get a job, you gotta have a wife...makes the whoop-de-do sign with his hand. haha! "Anyway, 20 years old.....had to build a house....oh well...." mumble...snore....mumble.... talking about "now the Koreans get into it, and we have to go fight them". Don’t know whose history he’s recounting, but he’s enjoying the conversation, he was actually in the military by the time he was 20. And I think this may be the conversation in which he called me by his sister’s name, Viloris. (She died a few years ago)
2:30am- "Blah, Blah, Blah..."
He's still refusing to drink water, but he insists on trying to talk. So I tell him all I can understand is “blah blah blah” unless he wants some water...he refuses, so, every time he talks I just interrupt him with his same gravelly voice saying “blah blah blah”, it quiets him for a few minutes, he may take a couple drinks, but it's not near enough, if I offer more, he just spits it out. So I keep telling him he might as well stop talking because all I can understand is “blah blah blah”. Unfortunately, even that tactic stops working and he just keeps mumbling...... oh well.... just a funny conversation to report. "have to laugh, right?" I've also learned that ignoring him also eventually gets him to quiet down.... hate to have that attitude, but he won't remember my actions of apparent cruelty anyway. Call it survival mode for the caregiver. ;-)
3:45am- "Please Sir..."
I awake to "PLEASE, GIVE ME SOMETHING TO EAT!" and I say, "You don't have to yell, that's what I've been waiting to hear." So, I go around and try to give him water for starters, "No!" Ensure, "No!" I say, "Dad, what do you want?" "Please sir, give me something to eat, this isn't a game, just let me go home and eat my breakfast or dinner." I offer a couple more times, "What do you want?" "Please sir....blah blah blah". As I sit here typing this in the dark, referring to his diaper which I've also checked, he's saying, "Sir, cut this thing offa me.......please sir.......please do some damn thing....." and the mumblings continue....4:05- back to sleep for me....praying this feeding tube today really works....aha! He's snoring! oops, now he's mumbling again.
4:30am- FEEDING!
first meal in about 36 hours! And by meal, I mean I got him to eat a few bites of cereal (sweet grits?), a few sips of Ensure and water and a bite of banana! and by a bite, I mean a quarter of a slice, about a 1/2 inch thick, but it's food in the belly! Yay! I have a little mercy on what I'm sure are aching shoulders and loosen his restraints a little, but I know how tricky he can be, so not too much. I keep looking over there and his hand is straight up at the elbow (the limit) He's trying to stretch the ties...we'll see...
9:00am- sweet moment…
Drs come in to take him down to pull 200ml...about 1/4 quart fluid off his lungs (better than the 700ml (3/4 quart) they pulled off in Arlington!) Just before the doctors came in, I just remembered, I was standing next to him and he appeared to have something in his hands... I think he was threading a fishing hook onto a line. He got a little frustrated with his shaky hands and gave me the hook. ;-)
After he returned, he "ate" a little... actually asked for some orange juice and drank a couple sips! asked me about how I was "General, Sir?" ...in and out of napping, telling me stories about early military days and days right out of high school... fishing -caught a 10 inch bass! Talk about college, and his brother working in a nearby town... snore....mumble...snore... ;-) I'm just happy we're in real history land instead of his scary captivity, wanting to get outta here place. He mumbles, I give him an affectionate look of attention, he gives a sweet shrug, like, "whatta ya gonna do?"... gotta get a job, if you get a job, you gotta have a wife...makes the whoop-de-do sign with his hand. haha! "Anyway, 20 years old.....had to build a house....oh well...." mumble...snore....mumble.... talking about "now the Koreans get into it, and we have to go fight them". Don’t know whose history he’s recounting, but he’s enjoying the conversation, he was actually in the military by the time he was 20. And I think this may be the conversation in which he called me by his sister’s name, Viloris. (She died a few years ago)
Thoughts of better days...
Tuesday, 12/6
Today would have been Mom & Dad’s 53rd Wedding Anniversary. (at their lakeside home in GA, mid-60s)
Now granted, they’ve been technically separated/divorced for the last 20-something years, but they still loved each other...they just couldn’t figure out how to work through those little things that kept them from working out the big thing. She has some sweet memories from the last few weeks, as she would rub his feet, or read to him, and he would look at her and smile and tell her how he appreciated her. Or during those scary moments in the hospital when he didn’t think he could trust me, he told her (using his pet-name for her) that “You’re the only one I can trust, Neet!” (her name is Anita). So, as bitter as today is for all of us, flying home without him…I hope that provides her with a little sweet.
(Dinner in Paris, circa 1961?)
Today would have been Mom & Dad’s 53rd Wedding Anniversary. (at their lakeside home in GA, mid-60s)
Now granted, they’ve been technically separated/divorced for the last 20-something years, but they still loved each other...they just couldn’t figure out how to work through those little things that kept them from working out the big thing. She has some sweet memories from the last few weeks, as she would rub his feet, or read to him, and he would look at her and smile and tell her how he appreciated her. Or during those scary moments in the hospital when he didn’t think he could trust me, he told her (using his pet-name for her) that “You’re the only one I can trust, Neet!” (her name is Anita). So, as bitter as today is for all of us, flying home without him…I hope that provides her with a little sweet.
(Dinner in Paris, circa 1961?)
He was just a simple man...
Monday, 12/5
We wake up and go to the funeral home to iron out the final details and payments of the day. Back home for a quick change and return to the cemetery where, anticipating rain, we’d decided to hold the service in a chapel they have on the grounds. So, here we were, minutes before the service looking at a beautiful blue sky, ah well, the best laid plans… right? It wasn’t too big a deal, we thought, until the VFW started their service for military honors and we realized they were about to do the 21-gun salute and playing of Taps -outside! I felt like such a bozo, running in and out of the chapel, trying to record the service for those who couldn’t be here. Not to mention, those who were there, were given no direction from the funeral director or the VFW fellows of what we were doing, or should expect! I barely got outside in time for the shots and the bugle, then I barely made it back inside to see them folding the flag to present to Mom! At the end of the day, I wish we had just done everything at the graveside, rain or shine, but...I pray he saw our hearts and felt honored anyway! Guess that’s what we get for trying to provide a little pomp and circumstance to a simple guy who wouldn’t have wanted it anyway. ;-)
We wake up and go to the funeral home to iron out the final details and payments of the day. Back home for a quick change and return to the cemetery where, anticipating rain, we’d decided to hold the service in a chapel they have on the grounds. So, here we were, minutes before the service looking at a beautiful blue sky, ah well, the best laid plans… right? It wasn’t too big a deal, we thought, until the VFW started their service for military honors and we realized they were about to do the 21-gun salute and playing of Taps -outside! I felt like such a bozo, running in and out of the chapel, trying to record the service for those who couldn’t be here. Not to mention, those who were there, were given no direction from the funeral director or the VFW fellows of what we were doing, or should expect! I barely got outside in time for the shots and the bugle, then I barely made it back inside to see them folding the flag to present to Mom! At the end of the day, I wish we had just done everything at the graveside, rain or shine, but...I pray he saw our hearts and felt honored anyway! Guess that’s what we get for trying to provide a little pomp and circumstance to a simple guy who wouldn’t have wanted it anyway. ;-)
another blur of days, more details to arrange, and a little bit of down time...
11/30-12/4
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6cuL4GAuoUP2WORo7nIp3d4r4DKf31ufwpAvFZ6Aa4s49jyfPp4qShJDJTl4rLppwCVtAmEi3PMTE1eLOTco7pHvK9zJjwjl837WGmC-_rfmr89T7SlXAtp6fGtHfjtOT30YPkuB93o0/s200/100_1193.JPG)
Finally home to sweet arms and faces of love, my Poppy-Dog, and my own bed! Which actually didn’t provide as much rest as you might think, after three weeks in sidebeds, I guess it was just too strange to settle back in. My sweet strong brothers met me with hugs and tears and encouragements of “how strong you’ve been”. I guess since I’d had these last two weeks to brace for the worst, I felt like I was coming home to comfort everyone else when they felt like they’d need to comfort me. I know it will hit me eventually, but right now, I guess I’m just in “git ‘er done” mode. So, we start making arrangements to fly up to Pittsburgh on Friday (per our conversation with the Yuma Mortuary on Tuesday, Dad should be flying up Wednesday night/Thursday morning), we get the rental car situated, start making plans for a Friday afternoon (about 3:00) service. Thursday afternoon, I get a call from Yuma to let me know that Dad will be on the Thursday evening/Friday morning flight, scheduled to arrive in WV about 5:00pm on Friday….uhhh, whoops! So, we had to have a good giggle about Dad almost being late to his own funeral! (And he was always such a punctual guy!) So, re-arrangements were made to fly out Sunday, hold the service on Monday and return on Tuesday. This actually worked out nicely, that we could get an obituary put in the local paper on Sunday and we ended up seeing a couple of Dad’s oldest friends we may not have seen otherwise. We stopped in Morgantown to have lunch at the little pub where my brother’s older son works, enjoy a few minutes with him before heading down the road to arrive in Fairmont, stop by to see Dad’s last living sibling,
our Uncle Jenk (87 years old) and Aunt Freda, visit with them awhile then to our home for the next couple days with long-time family friends Bill and Barb. Between Aunt Freda and Barb, we did NOT go hungry on this trip! ;-)
Finally home to sweet arms and faces of love, my Poppy-Dog, and my own bed! Which actually didn’t provide as much rest as you might think, after three weeks in sidebeds, I guess it was just too strange to settle back in. My sweet strong brothers met me with hugs and tears and encouragements of “how strong you’ve been”. I guess since I’d had these last two weeks to brace for the worst, I felt like I was coming home to comfort everyone else when they felt like they’d need to comfort me. I know it will hit me eventually, but right now, I guess I’m just in “git ‘er done” mode. So, we start making arrangements to fly up to Pittsburgh on Friday (per our conversation with the Yuma Mortuary on Tuesday, Dad should be flying up Wednesday night/Thursday morning), we get the rental car situated, start making plans for a Friday afternoon (about 3:00) service. Thursday afternoon, I get a call from Yuma to let me know that Dad will be on the Thursday evening/Friday morning flight, scheduled to arrive in WV about 5:00pm on Friday….uhhh, whoops! So, we had to have a good giggle about Dad almost being late to his own funeral! (And he was always such a punctual guy!) So, re-arrangements were made to fly out Sunday, hold the service on Monday and return on Tuesday. This actually worked out nicely, that we could get an obituary put in the local paper on Sunday and we ended up seeing a couple of Dad’s oldest friends we may not have seen otherwise. We stopped in Morgantown to have lunch at the little pub where my brother’s older son works, enjoy a few minutes with him before heading down the road to arrive in Fairmont, stop by to see Dad’s last living sibling,
our Uncle Jenk (87 years old) and Aunt Freda, visit with them awhile then to our home for the next couple days with long-time family friends Bill and Barb. Between Aunt Freda and Barb, we did NOT go hungry on this trip! ;-)
A Day with Mom
Tuesday, 11/29
Mom and I sleep in a little, then enjoy our complimentary continental breakfast and hit the ground running. Hotel shuttle to the airport to rent a car for the day, back to the hospital to make sure all the Medicare details are squared away, then to the Yuma Mortuary for one last visit with Dad and to work out all the details of sending him home. (Darren at Yuma Mortuary really made the process flow smoothly)
Dad was a “pine box” kind of a guy, but I don’t think he would have anticipated that because pine would actually be a special order this day in age, it would end up being more of a hassle and expense than he would want to deal with. So, we got a very simple square box coffin with Air Force blue material and silver handles (we actually liked it better!).
Then off to Mexico! I wanted to show Mom where we’d been the last 12 days, and since I’d made this trek a couple times, I felt confident we could make the drive by ourselves without any trouble. We did and she enjoyed meeting the staff that I’d grown so fond of at the hospital and then I took her to the little cafĂ© where I’d eaten on one of my walking excursions through San Luis – a field trip the staff insisted I take to get out of the room and give myself a break from our routine while Dad was in treatment.(I'll post those excursion pics later) Then back across the border for another Arby’s dinner, to bed and up to the airport Wednesday morning to Home Sweet TX Home!
Mom and I sleep in a little, then enjoy our complimentary continental breakfast and hit the ground running. Hotel shuttle to the airport to rent a car for the day, back to the hospital to make sure all the Medicare details are squared away, then to the Yuma Mortuary for one last visit with Dad and to work out all the details of sending him home. (Darren at Yuma Mortuary really made the process flow smoothly)
Dad was a “pine box” kind of a guy, but I don’t think he would have anticipated that because pine would actually be a special order this day in age, it would end up being more of a hassle and expense than he would want to deal with. So, we got a very simple square box coffin with Air Force blue material and silver handles (we actually liked it better!).
Then off to Mexico! I wanted to show Mom where we’d been the last 12 days, and since I’d made this trek a couple times, I felt confident we could make the drive by ourselves without any trouble. We did and she enjoyed meeting the staff that I’d grown so fond of at the hospital and then I took her to the little cafĂ© where I’d eaten on one of my walking excursions through San Luis – a field trip the staff insisted I take to get out of the room and give myself a break from our routine while Dad was in treatment.(I'll post those excursion pics later) Then back across the border for another Arby’s dinner, to bed and up to the airport Wednesday morning to Home Sweet TX Home!
Not what I had planned...
Monday, 11/28, 6:30am
After an extremely restful night’s sleep, with superb caregiving by the nurses at the Yuma ICU, Nurse Cindy woke me to let me know that Dad had given up the fight. Having gone through the last three weeks as we had, and since I'd had my tantrum on Friday night, I think I'd already started the grieving process, so everything was very matter of fact. Still feeling a little distant from the whole situation, I'm sure it will hit me eventually, and I will welcome the grief when it finally settles in. But wouldn't you know it, here’s the way my silly brain processed in the moment: “Doggonit, he’d JUST started his vitamins!” But I was relieved that he is finally at peace and that he did hold out long enough for me to get him back onto American soil so the process could move a lot easier…
Mom and my brother from South Carolina were already working on getting flights into Yuma that day. My brother sadly just changed his to arrive DFW the next day and Mom came on out to help with the details of sending Dad home to WV for burial. Frustratingly, flying standby, Mom missed the flight that would have gotten her in at 6:00 that evening, but thankfully she arrived at 10pm and didn’t have to wait for the 1am! In the meantime, I got us checked into a hotel (discount graciously provided by the New Hope Treatment Center!) and used the downtime to relax a little. There was an Arby’s at the end of the road and, being that Arby’s was one of Dad’s favorite restaurants when he’d come in for a visit…I just had to go get a Reuben sandwich to share with him one more time. A sweet moment came when, not realizing we were in the flight path of the local military base, a couple fighter jets flew over the Arby’s as I was walking up to it. I just thought to myself, “Ha, Hi Dad!” (In case I haven’t mentioned it before now, Dad was a jet pilot/flight instructor for the Air Force.) It's hard to see in the pic, but there is a jet in that blue expanse over the Arby's! ;-)
Back to the room for a little rest, then out for a little sightseeing. Yuma is such a beautiful corner of the world! FLAT FLAT! (we say TX is flat, but we’ve got nothing on AZ!) With mountains on the edges of the horizon! And palm trees here and there… just such an interesting texture!
I walked about an hour or so through a little corner of the desert, realizing after a while I didn’t have any water, or even a stick of gum to wet my whistle! Made me think of how parched Dad’s mouth had gotten these last few days.
So I get back to the hotel room to get cleaned up before going to get Mom (on her first attempt to arrive) and there was someone flying a little remote control bi-wing plane outside the hotel! (Dad also liked bi-wings and aerobatics). I just thought it was so neat all these little “hellos” he gave me that day…kinda like “Hey Booger, I’m flying free now! It’s okay!”
After an extremely restful night’s sleep, with superb caregiving by the nurses at the Yuma ICU, Nurse Cindy woke me to let me know that Dad had given up the fight. Having gone through the last three weeks as we had, and since I'd had my tantrum on Friday night, I think I'd already started the grieving process, so everything was very matter of fact. Still feeling a little distant from the whole situation, I'm sure it will hit me eventually, and I will welcome the grief when it finally settles in. But wouldn't you know it, here’s the way my silly brain processed in the moment: “Doggonit, he’d JUST started his vitamins!” But I was relieved that he is finally at peace and that he did hold out long enough for me to get him back onto American soil so the process could move a lot easier…
Mom and my brother from South Carolina were already working on getting flights into Yuma that day. My brother sadly just changed his to arrive DFW the next day and Mom came on out to help with the details of sending Dad home to WV for burial. Frustratingly, flying standby, Mom missed the flight that would have gotten her in at 6:00 that evening, but thankfully she arrived at 10pm and didn’t have to wait for the 1am! In the meantime, I got us checked into a hotel (discount graciously provided by the New Hope Treatment Center!) and used the downtime to relax a little. There was an Arby’s at the end of the road and, being that Arby’s was one of Dad’s favorite restaurants when he’d come in for a visit…I just had to go get a Reuben sandwich to share with him one more time. A sweet moment came when, not realizing we were in the flight path of the local military base, a couple fighter jets flew over the Arby’s as I was walking up to it. I just thought to myself, “Ha, Hi Dad!” (In case I haven’t mentioned it before now, Dad was a jet pilot/flight instructor for the Air Force.) It's hard to see in the pic, but there is a jet in that blue expanse over the Arby's! ;-)
Back to the room for a little rest, then out for a little sightseeing. Yuma is such a beautiful corner of the world! FLAT FLAT! (we say TX is flat, but we’ve got nothing on AZ!) With mountains on the edges of the horizon! And palm trees here and there… just such an interesting texture!
I walked about an hour or so through a little corner of the desert, realizing after a while I didn’t have any water, or even a stick of gum to wet my whistle! Made me think of how parched Dad’s mouth had gotten these last few days.
So I get back to the hotel room to get cleaned up before going to get Mom (on her first attempt to arrive) and there was someone flying a little remote control bi-wing plane outside the hotel! (Dad also liked bi-wings and aerobatics). I just thought it was so neat all these little “hellos” he gave me that day…kinda like “Hey Booger, I’m flying free now! It’s okay!”
Sunday, 11/27- Back to Yuma!
This morning, I woke up and started working on breakfast when Doc walked in to say everything was ready/signed off for us to leave, the ambulance should be here around 10 to get us to the border, where an American ambulance would take us on into Yuma. “What time is it now?” “About 9:40.” ACK! Forget breakfast, I need to dress and get the rest of everything packed! So, the transition went as smoothly as it was explained to me,
Loading into the San Luis Ambulance Sirens help bypass the mile wait to cross the border! ;-) The Border Transition between ambulances The Yuma Ambulance
So, we get to the Yuma Regional Medical Center ER where the whole intake process begins again.. I’m getting WAY too accustomed to this process. We get up to a room, finally, and I continue “mother-henning” the nurses through his particular care issues. After settling in a little while, I see this beautiful yellow IV bag come in that looks a lot like the bags I’ve been looking at during the last two weeks in Mexico, and sure enough, I ask and it IS an IV drip of vitamins!! “Multi-vitamin, Potassium Chloride and Thiamin” AHA! I’m so excited that they will continue along this line of “treatment”. Oh, and I asked one of the ER docs about the likelihood of bringing the minerals/treatments we got from Dr. Jim, if Mom can figure out a way to get them out here and the doc doesn’t seem opposed! Saying we could probably get it in through the IVs! I’m cautiously optimistic about the care we’ll be receiving here in Yuma! ;-)
Loading into the San Luis Ambulance Sirens help bypass the mile wait to cross the border! ;-) The Border Transition between ambulances The Yuma Ambulance
So, we get to the Yuma Regional Medical Center ER where the whole intake process begins again.. I’m getting WAY too accustomed to this process. We get up to a room, finally, and I continue “mother-henning” the nurses through his particular care issues. After settling in a little while, I see this beautiful yellow IV bag come in that looks a lot like the bags I’ve been looking at during the last two weeks in Mexico, and sure enough, I ask and it IS an IV drip of vitamins!! “Multi-vitamin, Potassium Chloride and Thiamin” AHA! I’m so excited that they will continue along this line of “treatment”. Oh, and I asked one of the ER docs about the likelihood of bringing the minerals/treatments we got from Dr. Jim, if Mom can figure out a way to get them out here and the doc doesn’t seem opposed! Saying we could probably get it in through the IVs! I’m cautiously optimistic about the care we’ll be receiving here in Yuma! ;-)
12 Days: a blur
It’s been a few days of mass chaos and confusion so, I apologize that I haven’t had a chance to get you caught up. By the time I posted that last entry (arriving at the clinic), we were actually on day 11 of the 12 day treatment protocol. It hit me so oddly that those 11 days had been such a blur! I just couldn’t believe we were almost finished! So, unfortunately, (or not depending on how much detail you were looking forward to) I will try to summarize the 12 days as they all did pretty much blend together as we experienced much the same routine every day.
Sadly, given the condition Dad was in when we arrived at the clinic, he never really caught on to the amazing good that could be going on in his body. The hallucinations, confusion, ripping out of IVs, and unfortunate sporadic necessary restraining that had begun the week before at the Arlington hospital continued here in Mexico. (I don’t know who felt worse about restraining Dad, me or Dr. Payan. By this point, I’d realized that was our only resort to keeping him getting the good stuff his body needed, I swear Dr. Payan almost cried as we put them on). Many times Dad asked if we could just go home, to which I would reply that we’re basically stuck here in a foreign country with no transportation, no way to get home, and besides, he’s not strong enough yet to make the journey anyway.
This picture is of one of his escape attempts: If he would just fight with, instead of against us and the process we’re working through, he’d start feeling better and stronger and we could go! In hindsight, I realize through his confusion, that it probably didn’t help to have people around him all speaking a foreign language… even though for the most part, everyone spoke to him in English, there was a lot of chattering in Spanish going on around him, including me in my broken Spanish trying to communicate with the staff. So, his distrust of me would come and go still. He was so cute trying to convince me that we could “just go down and get the car and go!” Sometimes, when he wasn’t liking me at that particular moment, he would say, “just take me home and you can go your way and I’ll go mine!”
Treatments continued every day and he took them like a champ, sometimes complaining that the “oven” was too hot, and maybe not wanting to take ALL the oral vitamins every day, but we got through most of the therapies that we were supposed to. I think the only thing we didn’t get to try was the magnet therapy. By the end of week one, the doc was finally starting to realize that Dad really wasn’t going to eat like he needed to in order to get the strength back up and finally started preparations for inserting a feeding tube.Long story shorter, we got the tube in on Thanksgiving Day! And we started giving him some Glucerna (the lower sugar version of Ensure). They were also able to give him his vitamins and detox drinks via tube as well, so this was going to work out just fine!
Friday, 11/25
After a couple days of deteriorating mental/physical state, even after putting feeding tube down his nose, Dr. Payan and I start to speak frankly. Dad’s probably not going to fight much longer. I email family/friends to start preparing for the worst and let myself throw a crying tantrum there in the room… pleading with Dad to snap out of it and start working with us.
Saturday, 11/26
Last official day of the protocols. Dr. Payan helps me work through the logistics of staying vs. getting back to US soil. Whereas, he was very open to continuing basic care, we decide that it would probably work best to get back across the border sooner than later, if for no other reason than to get me back into communication with and give family/friends the opportunity to get out here “just in case”. So, I packed our bags and prepare to get us back to the states on Sunday. I scoot my bed up right next to his tonight and hold his hand for a little while. Earlier, he’d been laying on his side and I noted then that as he rested his arm across the bed rail, that it probably wasn’t doing the IV in the crook of his elbow any favors. I tried to move his arm back to a pillow in front of him, but he kept putting it back. So, sure enough, later in the evening, the night nurse came in to give him some medicine and they had to “finish” pulling out the port and search for yet another vein to insert a new port. This one went into the top of the left hand, so… since he’s been leaving the feeding tube alone, I only restrained his right hand after he started messing with the new port. He fell asleep pretty soon thereafter. In the middle of the night, he started getting agitated again, (which he usually did when he needed to use the bathroom) and I started the process of reassuring him that he could go, right there in the bed, (I tried to avoid saying “diaper” so, I would just remind him that he’s on the bedpan and we would clean him up as soon as he was finished. As this has become another one of our routine conversations, it usually only lasts about 20 minutes or so before it clicks and he says “OK! Here it comes!” and I congratulate him and keep checking for completion so I can, as promised, get him cleaned up as soon as possible. Well, for some reason tonight (this morning) it takes about TWO HOURS!!! of his constant chattering “hurry hurry hurry, please please please, help help help” before he finally gave in to the urge. I was SOOO frustrated with him, he would never complete a sentence (We’d been having this same broken conversation for DAYS!) so, I’m constantly trying to decipher what I need to hurry to do, how can I help? Please...what? After we got him cleaned up, he didn’t stop mumbling/groaning as usual and I was so tired of trying to reassure him that we were leaving in just a few short hours, that I finally retreated to the farthest part of the room I could find, put my headphones on as loud as I could and tried to drown him out and sleep for a little while, I could actually still hear him over the music. When I finally awoke an hour or so later, I looked over and realized that I never tied down that left hand, and sure enough, to my despair, he’d pulled out the feeding tube. AAAAUUUUUGGGHHHHH!!!! I cannot even describe my agony for him… not knowing how in the world we would feed him now…well, hopefully once we get into Yuma, they’ll put it back in and we can start over. So much for a quick summary! The process will continue with my own date stamps to describe the coming days…
Sadly, given the condition Dad was in when we arrived at the clinic, he never really caught on to the amazing good that could be going on in his body. The hallucinations, confusion, ripping out of IVs, and unfortunate sporadic necessary restraining that had begun the week before at the Arlington hospital continued here in Mexico. (I don’t know who felt worse about restraining Dad, me or Dr. Payan. By this point, I’d realized that was our only resort to keeping him getting the good stuff his body needed, I swear Dr. Payan almost cried as we put them on). Many times Dad asked if we could just go home, to which I would reply that we’re basically stuck here in a foreign country with no transportation, no way to get home, and besides, he’s not strong enough yet to make the journey anyway.
This picture is of one of his escape attempts: If he would just fight with, instead of against us and the process we’re working through, he’d start feeling better and stronger and we could go! In hindsight, I realize through his confusion, that it probably didn’t help to have people around him all speaking a foreign language… even though for the most part, everyone spoke to him in English, there was a lot of chattering in Spanish going on around him, including me in my broken Spanish trying to communicate with the staff. So, his distrust of me would come and go still. He was so cute trying to convince me that we could “just go down and get the car and go!” Sometimes, when he wasn’t liking me at that particular moment, he would say, “just take me home and you can go your way and I’ll go mine!”
Treatments continued every day and he took them like a champ, sometimes complaining that the “oven” was too hot, and maybe not wanting to take ALL the oral vitamins every day, but we got through most of the therapies that we were supposed to. I think the only thing we didn’t get to try was the magnet therapy. By the end of week one, the doc was finally starting to realize that Dad really wasn’t going to eat like he needed to in order to get the strength back up and finally started preparations for inserting a feeding tube.Long story shorter, we got the tube in on Thanksgiving Day! And we started giving him some Glucerna (the lower sugar version of Ensure). They were also able to give him his vitamins and detox drinks via tube as well, so this was going to work out just fine!
Friday, 11/25
After a couple days of deteriorating mental/physical state, even after putting feeding tube down his nose, Dr. Payan and I start to speak frankly. Dad’s probably not going to fight much longer. I email family/friends to start preparing for the worst and let myself throw a crying tantrum there in the room… pleading with Dad to snap out of it and start working with us.
Saturday, 11/26
Last official day of the protocols. Dr. Payan helps me work through the logistics of staying vs. getting back to US soil. Whereas, he was very open to continuing basic care, we decide that it would probably work best to get back across the border sooner than later, if for no other reason than to get me back into communication with and give family/friends the opportunity to get out here “just in case”. So, I packed our bags and prepare to get us back to the states on Sunday. I scoot my bed up right next to his tonight and hold his hand for a little while. Earlier, he’d been laying on his side and I noted then that as he rested his arm across the bed rail, that it probably wasn’t doing the IV in the crook of his elbow any favors. I tried to move his arm back to a pillow in front of him, but he kept putting it back. So, sure enough, later in the evening, the night nurse came in to give him some medicine and they had to “finish” pulling out the port and search for yet another vein to insert a new port. This one went into the top of the left hand, so… since he’s been leaving the feeding tube alone, I only restrained his right hand after he started messing with the new port. He fell asleep pretty soon thereafter. In the middle of the night, he started getting agitated again, (which he usually did when he needed to use the bathroom) and I started the process of reassuring him that he could go, right there in the bed, (I tried to avoid saying “diaper” so, I would just remind him that he’s on the bedpan and we would clean him up as soon as he was finished. As this has become another one of our routine conversations, it usually only lasts about 20 minutes or so before it clicks and he says “OK! Here it comes!” and I congratulate him and keep checking for completion so I can, as promised, get him cleaned up as soon as possible. Well, for some reason tonight (this morning) it takes about TWO HOURS!!! of his constant chattering “hurry hurry hurry, please please please, help help help” before he finally gave in to the urge. I was SOOO frustrated with him, he would never complete a sentence (We’d been having this same broken conversation for DAYS!) so, I’m constantly trying to decipher what I need to hurry to do, how can I help? Please...what? After we got him cleaned up, he didn’t stop mumbling/groaning as usual and I was so tired of trying to reassure him that we were leaving in just a few short hours, that I finally retreated to the farthest part of the room I could find, put my headphones on as loud as I could and tried to drown him out and sleep for a little while, I could actually still hear him over the music. When I finally awoke an hour or so later, I looked over and realized that I never tied down that left hand, and sure enough, to my despair, he’d pulled out the feeding tube. AAAAUUUUUGGGHHHHH!!!! I cannot even describe my agony for him… not knowing how in the world we would feed him now…well, hopefully once we get into Yuma, they’ll put it back in and we can start over. So much for a quick summary! The process will continue with my own date stamps to describe the coming days…
Friday, November 25, 2011
Centro Medico del Noroeste
Bienvenidos a Mexico! About 20 miles south of Yuma, we crossed the Border without any issue. San Luis is a sweet little border town, San Luis, AZ and San Luis, Mex... I liken it to Texarkana! ;-) So, five minutes into Mexico we arrive at our home away from home for the next 12 days.![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJxGg43YBee9xfh_AAygMZbxs_rJs9fbQ7yhnTVf3wVr-_fqXeYKNILdfPDxs7heEKt7x_rDlZfPXEf6Lxke5i841CzuezHrOGbPyVumyaJgoGZw063ktIRKSeI4kgpthWe4w2bvy7p2k/s200/11.15-26+-Centro+Medico+del+Noroeste-.JPG)
After a quick trip up the "elevator", almost immediately upon arrival they put Dad on an IV and tell me to rest! I've got a real bed (hospital bed, but better than a fold-out bedside chair!) and I start settling in, putting clothes away, etc. Due to a little misunderstandng on both our parts, I was still stressing over a few caregiver details for the first little while...feeling like (where's the rest I was promised?!) At some point they finally pop in to check on me and see that I'm on the brink. They thought we were in the room sleeping and I didn't realize they were right across the hall for me to call on at any time! They were SO apologetic when they realized I've still been bearing the heavy caregiver role this last hour or so...when they realize I haven't rested at all, they spring into action making sure I know all I need to know and practically hogtie me to the bed while they take care of things now. Aaaahhhh.....
English-speaking staff leaves around dinner time, so now I have to really dig deep into the reserves of all those (2-3) Spanish classes I've taken, kept FreeTranslation.com up on the computer tab and watching the few English channels with their Spanish subtitles! I think I'm catching on....slowly! ha!
Dad goes through a daily regimen of vitamin IV drips, Hyperbaric (Oxygen) Chamber, and Infrared (I call it oven-time on his bed) treatments. He also gets 3-4 detox drinks and about six vitamins he needs to get down everyday. A couple times, they took his blood and ran it under a UV light, which kills all the bacteria and other bad stuff, then they pump it with a growth factor to help multiply the good white cells, incubate it for 24 hours and give it back to him! A transfusion with his own blood made stronger! Here are a sampling of pictures that show each of these processes:
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOBJC_Zoh7zQRWl7zOoiEpIBtbgxsWhLmaCuUq-2xi8Wu7qxHOfJLd1h_8W1qQfrataiebo53zy36IdUZu8vgdHI2fkuN28GFpqxUcWteO78521VjTu2EDDk4lA9qhMOMFStFw_Zfcl5o/s200/11.17-Daily+Hyperbaric+%2528Oxygen%2529+Treatment.JPG)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-v4-0uj94AhhoaCK44a6Ql4KDCRWBDRgIouiUvN5qNfvQrqj57Ly6pvOcEhI5gqLGcZo4QxSzFfWcAuy9GteJQCYeoH-OkdHxl3vJllqp52tIMnqVqpzsxv2ivmYrIzvm40ADmL0Xs3I/s200/11.18-UV+Treatment+on+blood+to+be+used+for+vaccine.JPG)
And last but not least, here is our wonderful team of doctors and techs (the ones I see everyday. There's a whole lot more people behind the scenes who really know their stuff!
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhte09NinTlL8dGqxZGAEqHvnuKj_UiKTk8eq8jeHSH8F5hrjI941dq4e4ZyEpyS6q_YNQIdrK3bqW6GxXlCDMlAurxT51Ofsk4GiyrHIQ7w4nxvrGHVxXwPeFmSlaa8JecCowB_1SYc5s/s200/100_1062.JPG)
Dr. Edgar Payan (The Man in Charge)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdNoLOs74l6quXQsx-D_T_2fzyQYfD2vGM2lqlx5Ze456TInXM4qrM81aNr2MM0lE-1LwcycOjZVpmfkT_JBA0W1HNN-aHe4dhL8SPr8JwwPEs2swBS0qrCTTypkuxRmi-psKbJi_zZtE/s200/100_1063.JPG)
Father/Daughter Tech Dynamos Luis & Yadi
With Ismael, everything is "Molto Bene!"
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_H5U5Rv251qrbcziuOkcM-FT5CWJe1vtsqKM-grqQH6pm78CEFwdOWxpimFl6Q2B06WJjRRgwSfJJz9WIN5Qz5ty9D8MbQPSi0oFULmmdmM33ek9p4cmEU5T6iEcMDhB_KB-VekPfL48/s200/Eric-+The+Weekend+Guy.JPG)
Eric is our very attentive Weekend Guy
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiRtcXt7EurjWtaEs9lzeGz9V7n3JWtuf5vJoDWT5l0zb-AcNkIJYPu4xXCfNRQUaXJJVEawwKux4QluYtAeDycLm_3KgcXWRp1Lqw8ZKlhFRQhexBXmvnQ3PxzgPBwECdLNUTfSBGdXDg/s200/Teresa-+sweet+morning+nurse.JPG)
Teresa is one of the ever-patient nurses that were so attentive to our many needs.
English-speaking staff leaves around dinner time, so now I have to really dig deep into the reserves of all those (2-3) Spanish classes I've taken, kept FreeTranslation.com up on the computer tab and watching the few English channels with their Spanish subtitles! I think I'm catching on....slowly! ha!
Dad goes through a daily regimen of vitamin IV drips, Hyperbaric (Oxygen) Chamber, and Infrared (I call it oven-time on his bed) treatments. He also gets 3-4 detox drinks and about six vitamins he needs to get down everyday. A couple times, they took his blood and ran it under a UV light, which kills all the bacteria and other bad stuff, then they pump it with a growth factor to help multiply the good white cells, incubate it for 24 hours and give it back to him! A transfusion with his own blood made stronger! Here are a sampling of pictures that show each of these processes:
And last but not least, here is our wonderful team of doctors and techs (the ones I see everyday. There's a whole lot more people behind the scenes who really know their stuff!
Dr. Edgar Payan (The Man in Charge)
Father/Daughter Tech Dynamos Luis & Yadi
With Ismael, everything is "Molto Bene!"
Eric is our very attentive Weekend Guy
Teresa is one of the ever-patient nurses that were so attentive to our many needs.
Wednesday, November 23, 2011
Hello Yuma!
11/15/2011- We get up at O'Dark:30 to catch our flight. I had called to get the wheelchair transport service to pick us up at 5:30... they get there at 6:00, but we get to the airport with plenty of time to spare - actually almost too much time as Dad starts to get agitated with the wait. Although we've been talking about the trip, trying to build it up these past couple of days, he's still not quite sure about what's going on. We give him a Benadryl to help relax him say our goodbyes to Mom and wheel onto the plane.
We have to change planes in Phoenix, which was about the worst experience EVER! We landed and had 30 minutes to hike it across two concourses and board the plane to Yuma (recall, airlines start boarding 30 minutes prior to takeoff). Even with the little airport wheelchair guy helping with Dad, we get to the gate for immediate boarding (we're the last ones to get there) and we have to go down an elevator to go outside and load up a ramp! The little boys that were supposed to be helping us were no help whatsoever. *I* lifted Dad from the airport wheelchair to the aisle chair, with no help from either one of them, then, thinking they had the ramp to plane thing under control, I went on up to my seat on this puddle-jumper aircraft (seats two/aisle/two) thankfully we were in the second row (or at least that's where I saw two seats and I took them!) They're taking unusually long to board, so I get up to check and see if maybe he's being difficult. They've gotten him up to the last three feet where the ramp narrows and I hear him yelling, "You're breakng my arms!" One's in front, one's behind and they're just clueless. Dad isn't even sitting on the seat and the seatbelts they've got crossed in front of him are,...and I yell, "You're choking him!" so, the one fellow between me and Dad scoots in a little closer to him and I reach between the guy's legs to boost Dad back up onto his seat. About five more minutes of ordeal and he's in the seat. All fired up! But he gets settled down and the flight attendant offers him a bite-size Snicker from her own snack stash as this is only an hour flight, there's not even drink service. He takes a 1/4 bite of that little candy.
So, we were met, practically "at the gate" by Dr. Fredda Branyon, Clinic Founder/Director, and Larry O'Toole who has become my best friend in the last five days. I just cried! It's like a deep sigh of relief, we finally made it! Hope is in sight! Larry & Luis take Dad to "the facilities", then we load up and we're on our way into Mexico!
BY THE WAY.... THANKS SO MUCH to Dad's friend Doug who flew down from Indiana to help with the transition from the hospital, being home for a couple days (needed that forklift strength!) and making the plane rides with us to Yuma. Even though we were seats apart, it was such a comfort just knowing you were in the near vicinity if I needed your assistance. ;-)
HELLOOOOOOO YUMA!
Tuesday, November 22, 2011
"New Hope" on the Horizon
So, I finally get on the computer and google "homeopathic doctors" and I think the second link on the page was to New Hope Treatment Center in Yuma, AZ...but the clinic is actually in Mexico. I remembered that somewhere very early on in this little adventure, someone told me about a Hope Clinic in Mexico, and that's all I needed to see. I called them and the relationship began. Larry and Nancy in the office were so sweet throughout the next few days. Larry was always available for an encouragement, I felt like I was the only person on their client list. They knew the urgency of our situation and they cared...unlike certain aforementioned doctors of the American Medical Establishment.
So, back to the hospital hallucinations/delusions for a minute. I thought, since dad was currently afraid of me, I'd try to enter his new world and tell him we're "hatching a plan for his escape." One of Dad's best friends, Doug was flying down from Indiana so we could "break him out of this hostage situation". And Doug did fly down that evening (Thursday, 11/10). Alas, by the time he got there, Dad had finally come down off his manic run and was so groggy he didn't even realize Doug was there - and so began a longer than 24 hour sleep.
(Insert: a part of the story that's important, but don't know where else to put it... during this general timeframe, I'm trying to get medical records released to the New Hope Clinic from the Arlington Hospital... Medical Records Dept can't release until he's been discharged, talk to the doctor...so, I did...he says he can't but will see... later in the day, I happen to pass him as he's talking to a woman in the hall and I hear my situation, so, he points her to me and she says she'll get it taken care of (and also that she's very interested in the homeopathic methods of treatment). Well... I couldn't remember her name, just a position that ended up not being hers, so, nobody knew who I was asking for and nobody would call the dr to ask him who I was trying to find to see if she had sent our records over to Yuma!)
Friday, I had my own annual doctor exam to attend (gotta take care of the caregiver!) and while I was out (almost returned) my family calls in a panic from the hospital that they're talking about discharging him with a potassium* pill that he can't even swallow because he's not awake!! The man is in a deep sleep and they want to kick him to the curb!?!?! AUGH!!!!! (*FYI, low potassium contributes to hallucinations, etc.) I got back to the hospital in quite a heat. This meek child has definitely found her voice during this whole process! As I was practically running through the halls to get back to our floor, (providence of providences!) I ran into the lady from the day before! She said the records should have been sent by now.... turns out she's some big hospital administrator....our doctor's boss! haHA! Okay, so anyway... get upstairs, create a little scene, finally one of the case workers stops me long enough to let me know that the records have been sent... sighhhh...... okay, I can breathe a little easier now....and they finally get in touch with the doctor to learn that he is not discharging dad yet... and he's ordered up a new IV of potassium drip. THANK YOU! To borrow an old friend's expression...Holy cowherd!
In the meantime, Doug is hard at work, trying to find somebody local, and he does! There's a chiropractor in West Fort Worth who specializes in manipulating organs that have gotten themselves all twisted up! Sounds strange, but this apparently contributes to a lot of cancers and other maladies. So, Doug and I drive out and visit with Dr. Jim for awhile and Doug has found a friend for life.
Dr. Jim is like-minded to the belief structure of my dad and all his friends...I believe it too..it's just hard to explain here. Anyway, so that seals the deal that Dr. Jim just HAS to come and work on dad... Doug spares no price to help his friend, "The Leg(endary)" (after famous movie actor, Randolph Scott). ;-) He comes for the next three nights and we see good results, but slow...We have to get him to AZ, get him eating, get him stronger NOW!
So, after a whirlwind weekend of getting Dad home from the hospital and reacclimating to the home front (he sleeps most of the two days we're home). Sunday, Doug has his wonderful secretary doing some major overtime, finding us flights out for Tuesday morning. Monday I hit the ground running to get all the last details straight for our trip to Mexico for the next two weeks. Thankfully Dad had a CD with me named as a co-signer that was just about the right amount to get him into the program...a couple wire transfers and we're set! WHEW!
(Insert: a part of the story that's important, but don't know where else to put it... during this general timeframe, I'm trying to get medical records released to the New Hope Clinic from the Arlington Hospital... Medical Records Dept can't release until he's been discharged, talk to the doctor...so, I did...he says he can't but will see... later in the day, I happen to pass him as he's talking to a woman in the hall and I hear my situation, so, he points her to me and she says she'll get it taken care of (and also that she's very interested in the homeopathic methods of treatment). Well... I couldn't remember her name, just a position that ended up not being hers, so, nobody knew who I was asking for and nobody would call the dr to ask him who I was trying to find to see if she had sent our records over to Yuma!)
Friday, I had my own annual doctor exam to attend (gotta take care of the caregiver!) and while I was out (almost returned) my family calls in a panic from the hospital that they're talking about discharging him with a potassium* pill that he can't even swallow because he's not awake!! The man is in a deep sleep and they want to kick him to the curb!?!?! AUGH!!!!! (*FYI, low potassium contributes to hallucinations, etc.) I got back to the hospital in quite a heat. This meek child has definitely found her voice during this whole process! As I was practically running through the halls to get back to our floor, (providence of providences!) I ran into the lady from the day before! She said the records should have been sent by now.... turns out she's some big hospital administrator....our doctor's boss! haHA! Okay, so anyway... get upstairs, create a little scene, finally one of the case workers stops me long enough to let me know that the records have been sent... sighhhh...... okay, I can breathe a little easier now....and they finally get in touch with the doctor to learn that he is not discharging dad yet... and he's ordered up a new IV of potassium drip. THANK YOU! To borrow an old friend's expression...Holy cowherd!
In the meantime, Doug is hard at work, trying to find somebody local, and he does! There's a chiropractor in West Fort Worth who specializes in manipulating organs that have gotten themselves all twisted up! Sounds strange, but this apparently contributes to a lot of cancers and other maladies. So, Doug and I drive out and visit with Dr. Jim for awhile and Doug has found a friend for life.
A light break in the drama...
I just found these two pics taken the weekend before we started the whole hospital route. Just wanted to share a couple of the last good moments...
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjILG2mcTQvm4sfMdlyIi0ztbMVGYC5pdCe5zQGx7mWBaOU7rxKGVMaAPR0VZPby5azO_vNWuMJ1n_B2DA9l8B27-VN0o4kGzRwBgn0y9_ychSZt2KVMfDSJN34yhN_c9nx87VLNV632_g/s200/11.5-+getting+some+fresh+air%252C+but+it%2527s+cold%2521.JPG)
A little more fresh air, but it's cold out here! (with daughter, Debby)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiS4DeFHR7eN_hKEUcZ8VgXx4_Crw6DZSoQdraela7mIe80kkDzHtW2s63lB-6EGpawD7mx1Vc98MFXuGrJyG9Qjx_RkC8cnsLr5QaIFcm26U6YmZpcGiHNGLGcC9yAGqz45BgOBjl-on8/s200/11.6-+resting+after+a+shower.JPG)
After the exhausting ordeal of taking a shower (even with a seat), he had to stop at my bed for a little nap. I just had to catch this sweet moment between him and Mom.
A little more fresh air, but it's cold out here! (with daughter, Debby)
After the exhausting ordeal of taking a shower (even with a seat), he had to stop at my bed for a little nap. I just had to catch this sweet moment between him and Mom.
Monday, November 21, 2011
Makings of a Conspiracy
So, the week we got home, he was beginning to have some pain alternating between his left knee and left hip. My smart brother suggested crutches, as we were basically hobbling him around ourselves. I got him in to a chiropractor that could start working on his back, trying to give him a little relief in that area... As we neared the end of October, a friend of ours offered use of her old walker.
This was definitely easier than maneuvering the crutches, and that seemed to help, but he just kept getting weaker. Took him to the ER one Saturday night (10/21), just to get him checked out, with the weakness/low intake, just figured it would be safe to get some fluids into him and have all his vitals checked out.
In the meantime, we finally found a doctor who would see him with just his retired military insurance...(forgot to mention, he never set up his Medicare, since he's never had reason to go to a doctor these past 18+ years! Can't even remember the last time he's had a cold!) Went to our "meet & greet" appt on 10/24
I get the immediate impression this guy was not excited about our natural plan of action...so it goes in the American Medical community. But he ordered a CT scan (a week later) and a followup appt for a week after that! Seriously!? Two weeks for looking into a serious cancer situation?!?, but I guess since we're not going the traditional "cut and burn" route, they're not in any hurry to help us figure out what we're dealing with.
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeJwl30jH2pWBrdPaoelKUGDKpVjOGymIKIWcQfMI_2O50EOiy1KAfB2cV8YZ8IdwYUJhLyGM07QEPXS6_XRqizd09-v3QRCsIpT2kWCUFpqUpg5fq0kEA4QEcPAuTa9NUj3ZjGYWRxJU/s200/10.31-Let%2527s+see+what%2527s+in+there%2521.JPG)
So, two weeks later, (Monday, 11/7) back to the doctor who comes in with his very somber look, saying basically, there's really no hope here... but, let's put him in the hospital a couple days, see if we can build up his fluids, get him a little stronger for you. To make a very long story short, since I'm really trying to get caught up to current days, a couple days later, now with no strength in his legs at all...dad was going through a variety of hallucinations, he was frantically telling us to get furniture moved around the room (that wasn't there), for one of the milder moments. The mania continued for about 36 hours he didn't sleep, talking constantly, no rest for a weary brain (or weary daughter at the bedside for that matter). At our lowest point, in the middle of the night, he was so agitated he was ripping out his IVs and I finally had to have him restrained. ugh.
So the following morning, when he was trying to get out of bed, and I grabbed his feet to put him back in, he pulled back so I could see his intent was to kick me with both feet in my chest. Thankfully, he's slower than my reaction and not strong enough to hurt me...but his thoughts were that he was being held hostage in some dumpy garage in WV (I got that information when I let him talk to Lisa on the phone, hoping her voice would bring him around. Instead he used the phone call to beg for help, that he was being held hostage by the worst kind of people he could think of. Anyway, he was in about the worst possible place he could be, and he was afraid of me. Thus we have our conspiracy...
During all of this, I'd had a visit from the oncologist whose outlook was just as bleak if we didn't go the chemo/radiation route..."3 months if you don't do what we tell you to do". He wouldn't give an iota of attention to my attempts to explain to him, show him studies where the natural route has worked...but since there haven't been any accepted clinical studies in his medical journals, he wanted nothing to do with the rantings of a daughter doing what she knows in her heart can have success.
I get the immediate impression this guy was not excited about our natural plan of action...so it goes in the American Medical community. But he ordered a CT scan (a week later) and a followup appt for a week after that! Seriously!? Two weeks for looking into a serious cancer situation?!?, but I guess since we're not going the traditional "cut and burn" route, they're not in any hurry to help us figure out what we're dealing with.
So, two weeks later, (Monday, 11/7) back to the doctor who comes in with his very somber look, saying basically, there's really no hope here... but, let's put him in the hospital a couple days, see if we can build up his fluids, get him a little stronger for you. To make a very long story short, since I'm really trying to get caught up to current days, a couple days later, now with no strength in his legs at all...dad was going through a variety of hallucinations, he was frantically telling us to get furniture moved around the room (that wasn't there), for one of the milder moments. The mania continued for about 36 hours he didn't sleep, talking constantly, no rest for a weary brain (or weary daughter at the bedside for that matter). At our lowest point, in the middle of the night, he was so agitated he was ripping out his IVs and I finally had to have him restrained. ugh.
So the following morning, when he was trying to get out of bed, and I grabbed his feet to put him back in, he pulled back so I could see his intent was to kick me with both feet in my chest. Thankfully, he's slower than my reaction and not strong enough to hurt me...but his thoughts were that he was being held hostage in some dumpy garage in WV (I got that information when I let him talk to Lisa on the phone, hoping her voice would bring him around. Instead he used the phone call to beg for help, that he was being held hostage by the worst kind of people he could think of. Anyway, he was in about the worst possible place he could be, and he was afraid of me. Thus we have our conspiracy...
During all of this, I'd had a visit from the oncologist whose outlook was just as bleak if we didn't go the chemo/radiation route..."3 months if you don't do what we tell you to do". He wouldn't give an iota of attention to my attempts to explain to him, show him studies where the natural route has worked...but since there haven't been any accepted clinical studies in his medical journals, he wanted nothing to do with the rantings of a daughter doing what she knows in her heart can have success.
Subscribe to:
Posts (Atom)